Welcome

Welcome to The Matt White CureALS Foundation website.  

 This website is designed to educate, entertain, and even inspire.  By sharing the events of my life and my daily struggle to live with ALS you will learn how I do it, see the fun and interesting things someone in a wheelchair and on life support can do, and maybe you’ll find a way to try or do something you’ve never thought possible. 

ALS is a horrible disease.  It robs its victims of all of their voluntary muscles including the diaphragm which causes those afflicted to suffocate and die.  I have lost the ability to use my arms or legs.  I can’t speak, or chew food or swallow.  I cannot breathe.  I get my food through a tube and my air from a machine.  I move around with a wheelchair and I communicate through a computer.  I also love every minute I’m alive! 

With the help of a loving wife and family and generous support from friends I’m able to do many of the things they can do.  I go to the beach, theatre, and restaurants.  I read and write and follow my favorite teams.  I entertain friends, and relax by the pool with the sun on my face.  I enjoy the smell of fresh oranges, the feel of the wind whipping across the water, and seeing the sky turn pink every night at sunset.  I laugh at good jokes, cry during sad movies, and wonder about whom our next president will be.  I spend more time fishing than I ever did golfing.  I constantly think of ways to do things and ways to do them better.  I’m one of the fortunate few who live with ALS, and I’ve chosen to make the most of it.

 Making the most of it includes raising money to find a cure or treatment for this insidious disease.  Since creating The Matt White CureALS Foundation dozens of fundraisers and generous donors have contributed hundreds of thousands of charity dollars to this cause.  I take the responsibility of distributing this money very seriously.  Only the most progressive, active, successful, and promising researchers get disbursements from The Foundation.  100% of the money donated to The Matt White CureALS Foundation goes to ALS research.  All administrative, fundraising, and operating costs are paid by The Foundations Board of Directors, so your tax deductible donation will be used for the purpose you intended.  There is little that I do that gives me greater satisfaction than raising money for The Foundation.  Feel free to use this website to make a tax deductible donation to finding a cure for ALS. Please enjoy the website, and thanks again for visiting.

Matt White

Chairman

Matt White CureALS Foundation

210 Capstan Drive

Cape Haze, FL 33946

IRS 501-c3

Tax ID 71-0941815